The long path to a diagnosis in rare diseases using PCD as an example
People who have rare diseases often are not diagnosed for a long time and after much suffering. Personal accounts of two people with the genetic disorder PCD.
Here you'll find testimonials from people who suffer from chronic lung diseases such as asthma, COPD, or cystic fibrosis. Parents also share their experiences with chronically ill children.
People who have rare diseases often are not diagnosed for a long time and after much suffering. Personal accounts of two people with the genetic disorder PCD.
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