Exercising with primary ciliary dyskinesia – an amateur runner reports
Christine Braune has primary ciliary dyskinesia (PCD). In an interview she talks about why running is so important to her despite having this lung disease.
Posts of category: Testimonials
Here you'll find testimonials from people who suffer from chronic lung diseases such as asthma, COPD, or cystic fibrosis. Parents also share their experiences with chronically ill children.
My child has cystic fibrosis – How parents handle the diagnosis
When a child is diagnosed with cystic fibrosis, parents usually have a hard time. Three families share their experiences with getting the diagnosis on the PARI blog.
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 2
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 2
Working out with cystic fibrosis – Interview with strength training blogger Carola Landerer. Part 1
Carola Landerer has cystic fibrosis. In this interview, the 24-year-old describes how she started working out and what respiratory therapy means for her. Part 1
The nebuliser awaits every day
Daily nebuliser therapy is routine for people with cystic fibrosis or primary ciliary disease. Clinicians and patients report on treatment compliance.